Raising children with neurological disorders and realizing, after all these years, that I've only been "passing for normal"
Sunday, March 9, 2014
I Hate Packing
1. Tomorrow the children and I fly to San Antonio, TX, to visit my best friends from college who conveniently married each other and we haven't seen each other for 8 years. I would have been all prepared to go (house clean, bags packed, etc.) if I hadn't spent the last 11 days in bed with the flu. Marshall finally sent me to the doctor yesterday morning where they gave me antibiotics and real cough syrup. So, today, I'm starting to feel like myself and am spending the whole day packing because that's all the energy I have. Hopefully, tomorrow, I will have enough adrenaline going to keep the children in tow from Philly to Orlando to San Antonio.
2. This is our first trip with just the three of us, leaving Daddy at home. I've been planning it with my college besties for 15 months. But it will be an adventure. Of course, we're flying Southwest Airlines, because they have special "get on first" boarding passes for special needs families and their flight crews are, on the whole, a lot more cheerful. I plan to throw myself on their mercy at every opportunity.
3. I don't have a packing list. I generally just work from the one in my head, which frustrates Marshall to no end because then he doesn't know what to do to help. But it would take too long to write it all down.
4. Alex has no homework for the week (I'm taking both kids out of school for the trip because we're going when San Antonio schools have their spring break) because his teacher understands that going to a new place with people he doesn't remember or has never met before without daddy there to help is plenty to do in one week. You should have seen the grocery list I emailed to my friends just to keep him afloat for the week we're away. Miranda's teacher wasn't quite so understanding and sent home a big packet. I've decided to try to do some everyday and then not worry about it. Our spring break has already been all but eaten up by snow days, anyway.
5. As I was thinking about packing snacks for the plane, I was trying to prepare myself to be calm and insistent with the TSA. I always bring cups of applesauce for the kids to take their meds with and applesauce only comes in 4 oz containers. And I usually bring some of Miranda's vanilla milk drink boxes, which are 8 ounces. I've decided I can buy Alex some juice drink boxes on the other side of security, but these things I need to take with me. Hopefully, they won't go for the strip search this time. (Not kidding. I got that coming back from San Diego in 2012 because I wouldn't give up the drink boxes and they smelled funny to the machines.) Someday, we're going to have actual security instead of security theatre, but until then, I try to be patient and keep saying the magic word, "autism."
6. Pray for us. Pray that Alex's anxiety with be replaced with interest and excitement about seeing a cool new place. And meeting two new dogs. And people, of course.
7. I'll try to post fun pictures from Texas, but we don't have a lot of plans to go places. Mostly, to just be together and play. I think Miranda will find staying in a house with 3 little girls to be the best thing ever, after Aunt Katie's pool in San Diego. I think Alex will attach himself to the daddy of the house or follow the dogs around, reading to them. And I will enjoy being with good friends.
Posted by Sarah Boyle Webber at 8:50 PM
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